RTL Boulevard and the Kidney Foundation join forces to help children with kidney disease. To grow up with a kidney disease requires an incredible amount of them. In addition, kidney damage is lifelong. Jamai Loman (35) knows better than anyone what it is like to live with kidney failure. In 2018, his life was turned upside down from one day to the next when he was told he had acute kidney failure. “Then suddenly you are no longer a young, healthy person, but sick and addicted,” he told RTL Boulevard. Meanwhile, Jamai has had a donor kidney for a few years and is doing well. “Much more research needs to be done on kidney disease to give children with kidney disease a better future.”
“It went well for me. I just had a contract with RTL, have started making many new programs. I was allowed to harvest seeds that I had planted,” Jamai says of the period, just before he discovered that he had acute renal failure. For recordings of the program Better late than never he was going abroad for a month and did a check. “Just to be sure.” Then Jamai was told he had acute kidney failure. “Then everything goes so fast, and all sorts of concepts are used in the hospital. You are no longer a young, healthy person, but sick and addicted.”
The first association Jamai had with kidney disease was Bart de Graaff, who developed a growth disorder due to his kidney disease and died young. “Then you think very quickly: is this also my future?” says Jamie. “I shared all my insecurities and fears with my doctor. He immediately said that my fate was not necessarily the same as Bart de Graaffs.”
When Jamaai’s kidneys were examined, it turned out that his body had produced a substance. “And it’s turned on my body. You can not help it. Just misfortune.” One week after his diagnosis, it was already clear that a new kidney was needed. Many people close to him – an aunt, nephews, his brother-in-law – wanted to donate a kidney. “Eventually, my brother-in-law came out as the best match.” Since then, the presenter, as he puts it, has “left his life”.
Before he had a kidney transplant, Jamai had to undergo dialysis. A treatment in which an artificial kidney removes waste products and excess fluid from your blood. “Three times a week for five hours. It’s an absolute hell.” He has a hard time explaining why it is ‘stupid’. “You’re sitting in a chair, but it feels weird, so addictive. You just feel like you really should not be there. It also makes you really tired, because your body actually gets artificially” cleansed “in record time.”
A donor kidney often does not last a lifetime, but Jamai does not really think about it: “Of course there are times when it creeps up on me, but I made that kidney enjoy life, so I will do that for as long as possible. . ” In addition, he hopes for new developments in the cure of kidney disease: “It is already possible to grow mini-kidneys from stem cells in the laboratory. In the long run, damaged kidneys can hopefully be repaired in this way.”
Jamai was lucky with his donor kidney, which allowed him to quickly resume his life. Unfortunately, this is not the case for everyone. It is especially difficult for children with kidney disease. “Often a kidney disease can not be seen from the outside. And when people know you have a kidney disease, they often do not understand what it means and how much it can harm you, “explains Jamai.” Children with kidney disease have little energy, can not eat everything they like, must eat a many take medication and sometimes even dialysis, which is disabling. “1 in 20 children are at risk of developing kidney damage, eg due to high blood pressure or premature birth.
That is why the Kidney Foundation has set up Jonge Helden to help children with kidney disease. Jamai thinks it is ‘awful’ to see children who are unable to function fully due to their kidney disease. “Still, we should not underestimate how resilient they can be. Of course there are difficult moments, but they do not give up. Every day, these walkers push themselves to the limit by simply living. They are young heroes!”
Jamai thinks it is important for people to become more aware of how difficult it is, especially for children, to live with kidney disease. “The current picture needs to change. In addition, a lot of research is still needed to improve the quality of life for children with kidney disease and ultimately cure children. We must continue to support them so that they do not become victims, but special children with a special condition. . ” What Jamai above all hopes for is a healthy future for the young heroes. “If they are my age, then a kidney disease can hopefully be cured.”
In the Netherlands, one in twenty children is at risk of kidney damage. RTL Boulevard, along with, among others, Jamai is taking action for the Kidney Foundation to help these young heroes. To grow up with kidney disease requires an incredible amount of children. Also because kidney damage is lifelong. The Kidney Foundation invests in groundbreaking research to cure kidney disease. Do you also support the Young Heroes? Sms HOLDT to 7171. Or donate via www.nierstichting.nl.